Behind Closed Doors: IRBs and the Making of Ethical Research
by Laura Stark (The University of Chicago Press, 2012).
LAURA STARK HAS JOINED THE FACULTY AT VANDERBILT UNIVERSITY.
Email laura.stark@vanderbilt.edu
June 1 Behind Closed Doors reviewed in Clinical Research Best Practices, Vol. 8, No. 6.
May 18 Presented “Discretion and its Discontents: ‘Local Precedents’ and the Future of Human Subjects Research,” at Petrie-Flom Center workshop “The Future of Human Subjects Research,” Harvard Law School, Cambridge, MA.
May 1 Behind Closed Doors reviewed in Health Affairs.
APRIL 28 Presented “Knowing the Normals: The NIH’s Normal Volunteer Patient Program and the Experience of Postwar America” as part of the session “Oral History as Institutional History,” American Association for the History of Medicine Annual Meeting, Baltimore, MD.
APRIL 5 Behind Closed Doors reviewed in the Times Higher Education (UK) by Nathan Emmerich.
APRIL 4 Delivered invited talk “Declarative Groups: Making the Scientific World in Postwar America,” at Department of Science and Technology Studies, Rensselaer Polytechnic Institute, Troy, NY.
MARCH 17 Presented “Declarative Bodies: Overseeing Science in the Liberal Hour and the Case of US Human-subjects Regulation” at workshop “Regulating Research,” Max Planck Institute for the History of Science, Berlin, Germany.
FEBRUARY 8 Interview published in Inside Higher Education on book Behind Closed Doors: IRBs and the Making of Ethical Research.
JANUARY 23 Quoted in “Scientific misconduct and its wide-ranging effects” (Hartford Courant, page 1) regarding a data falsification case at the University of Connecticut.
JANUARY 13 Behind Closed Doors reviewed in the journal Science by Charles Lidz (vol 335, issue 6065, page 170).
DECEMBER 9 Presented oral histories of “Normal control” volunteers in postwar biomedical studies at workshop “When the Subject Speaks,” Wesleyan Center for the Humanities.
DECEMBER 4 Discussed new book in the Meet the Authors session at PRIM&R, National Harbor, MD.
NOVEMBER 4 Presented “What did Money Mean? Monetary Exchanges in Postwar Research with Human Subjects” (co-authored with Jill Morawski) at the History of Science Society Annual Meeting, Cleveland, OH.
NOVEMBER 1 Published review of Ethical Imperialism: Institutional Review Boards and the Social Science, 1965-2009 by Zachary Schrag in the American Journal of Sociology, 117( 3) November 2011: 1019-1021.
OCTOBER 10 Gave talk at Wesleyan’s Center for the Humanities on postwar volunteers in clinical research at the US National Institutes of Health.
SEPTEMBER 13 Appointed to the American Sociological Association‘s Committee on Professional Ethics.
SEPTEMBER 12 Launched the ACSPL Working Paper Series with co-editor Erica Chenoweth.
SEPTEMBER 1 Awarded faculty fellowship at Wesleyan’s Center for the Humanities for the fall-semester theme “Fact and Artifact” (co-proposed with Courtney Fullilove).
AUGUST 1 Published “Meetings by the Minute(s): How Documents Create Decisions for Institutional Review Boards” in Social Knowledge in the Making, Camic, Gross, and Lamont, eds., University of Chicago Press.
JUNE 27 Joined the journal History and Theory as Assistant Editor.
JUNE 20 Elected Chief Operating Officer of the Culture Section of the American Sociological Association.
JUNE 11 Presented “Valuing Volunteers: Three Methods of Compensating Research Participants in Postwar Human Sciences” at the Eighth Annual History of Economics as History of Science Workshop, Paris, France.
MAY 6 Gave invited talk “Reclaiming Empirical Ethics” for the Program in Science and Technology Studies workshop “Research Ethics: A Question of Method?” at Kennedy School of Government, Harvard.
APRIL 29 Gave invited talk “How ‘Local Precedents’ Guide IRB Decisions” at PRIM&R conference on Social, Behavioral and Educational Research, Boston, MA.
MARCH 25 Delivered invited talk “Group Consideration: The Making of Ethical Research in Postwar American Medicine” at the Center for Biomedical Ethics and Society, Vanderbilt University School of Medicine.
MARCH 22 Discussed “The Immortal Life of American Healthcare Inequalities” with members of the Trumbull, CT Library System as part of the “One Book, One Town” common read of The Immortal Life of Henrietta Lacks.
MARCH 4 Appeared on The Take Away to discuss “Ethics Violations in Health Experiments” and Obama’s Bioethics Commission, which met this week.
FEBRUARY 27 Quoted in “Past Medical Experiments on Humans Revealed” by Mike Stobbe, AP Medical Writer.
FEBRUARY 5 Presented “The Medicinal Use of College Students in an Over-the-counter Culture” at the contributors’ workshop for Groovy Science: The Counter-Cultures and Scientific Life, 1955-1975, hosted by MIT and Princeton University.
DECEMBER 1 Published “A Practical Guide to Research Ethics” in the SAGE Handbook of Qualitative Methods in Health Research with Adam Hedgecoe (Cardiff University, UK).
NOVEMBER 6 Awarded the 2010 Burnham Early Career Prize from the History of Science Society’s Forum for the History of the Human Sciences for “The Science of Ethics: Deception, the Resilient Self, and the APA Code of Ethics, 1966-1973.”
OCTOBER 25 Delivered invited talk, “Charting Evidence: Patient Records and the Making of Ethical Research at NIH circa 1960,” on legal and scientific techniques for documenting consent, at the University of Pennsylvania’s History and Sociology of Science Department.
OCTOBER 8 Published opinion piece on the past and future of research ethics in the LA Times and in syndication.
OCTOBER 7 Published “The Science of Ethics: Deception, the Resilient Self, and the APA Code of Ethics, 1966-1973” in the Journal of the History of the Behavioral Sciences.
OCTOBER 4 Public launch of the Wesleyan Digital Archive of Psychology with Jill Morawski, 12-1PM, 311 Allbritton Center, Wesleyan University.
SEPTEMBER 2 Awarded research grant from the American Sociological Association’s Fund for the Advancement of the Discipline for “How have research participants affected biomedical research practices?”
SEPTEMBER 1 Completed Stetten Fellowship at the National Institutes of Health, Office of NIH History.
AUGUST 15 Presented “Everyone’s an Expert? Warrants for Expertise in State Administration” at the annual meeting of the American Sociological Association, Atlanta, GA.
AUGUST 14 Congratulated Carreira da Silva, winner of the History of Sociology section prize for distinguished publication for Mead and Modernity, as a member of the selection committee.
AUGUST 9 Participated in the Digital Media & Learning Initiative’s second workshop on “facilitating better and faster IRB approvals” at the Carnegie Foundation, Palo Alto, CA.
JULY 6 Delivered invited talk “Open Deliberations in Restricted Settings: Rethinking the Legacy of the First Gene-transfer-trial Death for Ethics Review Boards” at CESAGen, Cardiff, Wales.
JUNE 15 Presented “From Captive Populations to Citizen Volunteers: The NIH Normal Volunteer Patient Program in the History of Human Subjects Research, 1953-1966” at the second annual Stetten Symposium on History in the NIH, Bethesda, MD.
JUNE 10 Awarded with Professor Jill Morawski a summer grant through Wesleyan’s Center for the Study of Public Life to collect and analyze archival data on research ethics in American psychology.
JUNE 4 Discussed “Surviving the Job Market” at the NIH History Graduate and Postdoctoral Symposium.
MAY 27 Presented “Can Scandals Cause Regulatory Change? Legal Consciousness and the Creation of the ‘Human Subject’ in the Long 1960s” at the annual meeting of the Law & Society Association, Chicago, IL.
MAY 20 Participated in the Digital Medial and Learning Initiative’s first workshop on “facilitating better and faster IRB approvals” at the MacArthur Foundation’s research network hub at UC-Irvine.
MAY 6 Delivered invited talk, “Saying is Believing,” on the history of how researchers have created evidence of informed consent, at the University of Maryland’s MCHOTSE.
MAY 2 Presented “From Captive Populations to Citizen Volunteers,” on the history of government-sponsored clinical research on healthy civilians, at the annual meeting of the American Association for the History of Medicine in Rochester, MN.
APRIL 3 Presented “Citizen-subjects,” at the University of Chicago’s Committee on Conceptual and Historical Studies of Science conference, “Human Subjects, Human Sciences,” co-sponsored with the Max-Planck Institute for the History of Science.
MARCH 22 Presented “On Being Normal in Abnormal Places,” at Harvard University’s Kennedy School Science & Technology Studies Circle seminar series.
JANUARY 2010 Started term as IRB member for the Community Health Center, a private non-profit healthcare provider that serves Connecticut residents.
DECEMBER 17 Published op-ed in Inside Higher Education on the importance of President Obama’s healthcare overhaul for college students (with Sociology of Medicine students: Suzanna Hirsch, Samantha Hodges, Gianna Palmer and Kim Segall).
DECEMBER 11 Published op-ed on the implications for Wesleyan students of the national debate over healthcare in The Wesleyan Argus.
NOVEMBER 20 Organized session “Small Groups, Big Science” and presented “The Board and the Ward,” a paper on 1950s ethics problems inside the NIH research hospital, at the 2009 annual meeting of the History of Science Society, Phoenix, AZ.
OCTOBER 30 Presented ethnographic research on “Warranting Expertise” at the 2009 annual meeting of the Society for the Social Studies of Science, Washington, DC, as part of the session “Tinkering with Objectivity: The Production of Guidelines and Their Consequences.”
OCTOBER 7 Hosted a public screening and discussion of “The Accidental Advocate,” a 2009 documentary on the science and politics of stem cell research.
SEPTEMBER 14 Served as discussant for Winship and Mehta’s paper “Moral Power” at the Harvard Sociology Department’s Culture and Social Analysis Workshop.
JUNE 2009 Co-authored paper and research on social inequality discussed in Prof. Mario Small’s new book, Unanticipated Gains (Oxford).
